After I hit "publish" yesterday, I looked again at this sentence: "Next step: an appointment with an endocrinologist, to take place in two months (I guess he's busy)," and thought, no. That's not good enough. It was the generalist who had made the initial appointment for me – how's that for service? – so I decided to call myself to advocate for moving the appointment forward. The receptionist put me on hold for a minute and returned to ask if I could come in that afternoon. Yes!
So I went. Good thing I had studied those Guidelines last night, because the best part of the meeting was when he started to say, "Well, it's recommended in a report prepared by the American Thyroid Association that – " "Oh, in this?" I interrupted, lifting my pencil from the notes I'd been taking on the back page and showing him the front of my printout. "Yes, that!" he laughed, pointing out one of the study's authors. "He's a great doctor and a good friend of mine!"
The second best part: at the end of the hour-long rendezvous, the good doctor himself took my coat from the rack, held it for me to step into, and then opened the door for me to pass through. Speaking of service ....
But those two parts were not the only good ones. In fact, all of the meeting was good, and I feel a lot more positive about managing this.
Like the generalist, the endocrinologist too was shocked that I had never been given a reason for the underlying cause of the hypothyroidism and set about doing the tasks that a doctor should have done when I was seventeen, like performing an ultrasound of my thyroid to further refine the diagnosis. There is evidence of inflammation in response to the anti-bodies, but only as would be expected given their presence, nothing worse. No goiter.
The best approach, he thinks, is to increase my medication dosage to push my TSH to a very low level, 1.2 or less, before pregnancy, which would give me a buffer of thyroid hormone so I have enough to share should a little creature begin drawing on my body's resources. I'll now be taking 25 micrograms more than before, for a total of 225 micrograms, which is about twice as much as would be expected for somebody of my weight. (I like to impress however I can.)
In six weeks, I'll go back for retesting of the hormone levels and, if necessary, another dose readjustment to further decrease the TSH. He'll track me even more closely immediately after pregnancy begins to make sure everything remains well-balanced.
The only thing that I'm not sure I'll be able to comply with was his request, made with a wink, to be the first to know should I see that elusive second line. I'll probably keep Gilles in the appropriate place in line for that one.
Great news! Well done you for pushing for an earlier app. Just think, if we blindly did what we were told all the time you would have two more months waiting for those reassuring answers and I would still be hoping, in two months, to catch a glimpse of the Mythical Dr S.
ReplyDeleteSo true! I'm so glad I did, and that you did too. Doctors should be real, not mythical!
DeleteThat's awesome that you got in the same day AND had a great doc. Good for your for being proactive!
ReplyDeleteIt was awesome, especially since the doctor was so amazing. One hour, all of my questions answered, and not a drop of impatience on his part. What a treat.
DeleteI second the other ladies. Great job asking for what you needed. Sounds like it takes some of the guessing out and like you have someone really great on your side now! How do you feel on that much TSH?
ReplyDeleteYes, the guessing is over, which is great. I don't feel any different yet - changes to this medicine's dosage usually take a while to be felt in the body.
DeleteI love your proactive approach!
ReplyDeleteWhenever I get an appointment that is more than 6 weeks out I call again the next day and hope to speak to somebody else. It's unbelievable how many times I was able get an earlier appt that way. Never made it in on the same day though. I'm impressed and happy for you!
It is a good idea - you never know when there might be a cancellation. Or a receptionist more willing to help!
DeleteYay! I'm so glad you were able to see him so soon.
ReplyDeleteI am so proud of you! When I miscarried the dr's wanted to do some testing to see if they could figure what was going on. I kept putting in off until one day my co worker said to me "even if you don't want to try again you owe it to yourself" and with that I made my appointment.
ReplyDeleteNeedsatimeout
We do owe it to ourselves, your friend is so right. I'm glad you made that appointment.
DeleteI'm so glad you were able to get the answers you needed today. I agree with the other ladies - way to advocate for yourself! Keeping my fingers crossed that you will be able to see that second line soon. I'm sure the doctor won't begrudge you if you tell Gilles first. :)
ReplyDeleteI think he'll be okay being the second to know. Well, he'll have to be!
DeleteThis is great news. I'm so glad you were able to get in to see this doctor so quickly! Yay you! It sounds like you're in good hands, too.
ReplyDeleteThank you! I think I am (in good hands) - it's a good feeling.
DeleteThings are happening here, I'm glad you will get some help figuring this out. And move forward with any medication and treatment needed.
ReplyDeleteI'm glad too, that I'm getting answers and moving forward. Thanks for the thoughts!
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